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Rheumatology Advance Access originally published online on February 17, 2007
Rheumatology 2007 46(5):872-876; doi:10.1093/rheumatology/kem008
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© The Author 2007. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org

Appearance self-esteem in systemic sclerosis—subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables

W. G. J. M. van Lankveld1, M. C. Vonk2, H. Teunissen1 and F. H. J. van den Hoogen1,2

1Department of Rheumatology, St Maartenskliniek Nijmegen and 2Department of Rheumatology, Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands.

Correspondence to: W. G. J. M. van Lankveld, Sint Maartenskliniek Department of Rheumatology, PO Box 9011, 6500 GM Nijmegen, The Netherlands. E-mail: w.vanlankveld{at}maartenskliniek.nl


  Abstract

Objectives. To determine the importance of skin deformity in systemic sclerosis (SSc) relative to other disease stressors and to find psychological correlates of appearance self-esteem (ASE) after controlling for disease status.

Methods. Disease-related stressors, symptoms, physical and psychological functioning, social support, coping styles, cognitions and ASE were assessed in 123 patients with SSc. A rheumatologist determined disease duration, SSc subtype, presence of organ involvement and skin-thickness scores. Stepwise hierarchical regression analysis of disease-related cognitions on ASE was performed after controlling for selected variables.

Results. Skin deformities proved a core stressor of the disease, only preceded by fatigue. Physician-assessed disease status, including modified Rodnan skin score, was unrelated to ASE. Sex, self-reported functioning and symptoms were related to ASE and used as control variables. Both acceptance and anxiety correlated strongly with ASE. The stepwise regression procedure only identified the disease-related cognition acceptance.

Conclusions. In SSc, ASE proved unrelated to the extent of skin thickness. Psychological interventions aimed at boosting ASE should primarily target the psychological factors acceptance and anxiety.

KEY WORDS: Appearance self-esteem, Disease cognitions, Systemic sclerosis, Psychological functioning

Submitted 25 September 2006; revised version accepted 3 January 2007.
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