Rheumatology Advance Access originally published online on May 27, 2007
Rheumatology 2007 46(8):1309-1315; doi:10.1093/rheumatology/kem084
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Disease pattern of spondyloarthropathies in Spain: description of the first national registry (REGISPONSER)—extended report
Department of Rheumatology, Hospital ‘Reina Sofia’ and University of Córdoba, Córdoba, 1Department of Rheumatology, Foundation Hospital of Alcorcón, Madrid, 2Department of Rheumatology, Hospital of Bellvitge, Barcelona, 3Department of Rheumatology, Hospital Puerta de Hierro, Madrid, 4Department of Rheumatology, Hospital Juan Canalejo, A Coruña, 5Department of Rheumatology, Hospital Monte Naranco, Oviedo, 6Department of Rheumatology, Hospital Parc Taulí, Sabadell, 7Department of Rheumatology, Hospital Gregorio Marañón, Madrid, 8Department of Rheumatology, Hospital General, Alicante, 9Department of Rheumatology, Hospital Doce de Octubre, Madrid, 10Department of Rheumatology, Hospital Virgen Arrixaca, Murcia, 11Department of Rheumatology, Hospital Ramón y Cajal, Madrid and 12Department of Research Unit, Spanish Foundation of Rheumatology, Madrid, Spain.
Correspondence to: Prof E. Collantes-Estévez, MD, PhD, Department of Rheumatology, Hospital Universitario Reina Sofía, Menendez Pidal, s/n 14004 Córdoba, Spain. E-mail: ecollantes{at}ser.es
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Abstract |
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Objective. The national registry of spondyloarthropathies (REGISPONSER) is launched to classify patients with this group of diseases treated in Spanish rheumatology clinics. This manuscript describes the methodological and organizational background as well as characteristics of patients finally included, and provides a comparative analysis between characteristics of both ankylosing spondylitis and undifferentiated spondyloarthropathy groups of patients.
Patients and methods. Twelve members of the GRESSER group have participated in the registry, for a one-year recruitment period. All consecutively registered adult patients treated in their clinics met the classification criteria of the European Spondyloarthropathies Study Group (ESSG). Data collected reflect the socio-demographic characteristics, as well as disease activity and functional status, clinical form at onset, treatment used and quality of life; all measured by standard instruments.
Results. Throughout 1 yr, 1385 patients have been included in the registry: 939 males (68%) and 440 females (32%), with an average age of 47 ± 13 years (mean ± S.D.), and an average disease duration of 12 ± 9 years. Diagnoses of the included patients were: AS (n = 842, 61%), PsA (n = 290, 21%), u-SpA (n = 205, 15%), reactive arthritis (n = 16, 1.2%), inflammatory bowel disease arthritis (n = 13, 0.9%) and JCA-spondyloathropathy (n = 13, 0.9%). Regarding clinical form, 54% had axial disease, 20% peripheral disease, 24% mixed disease and 0.6% isolated enthesitic form. Low-back pain was the first symptom reported in 53% of the patients, and most common extra-articular disease manifestations were psoriasis (25%), anterior uveitis (16%) and intestinal inflammatory disease (4%). Some kind of work disability was reported by 353 patients (25.5%).
Conclusions. Such databases are very useful to obtain information about characteristics of SpA patients treated in a certain location or following a specific treatment practice, and provide a tool for assessing the impact of the disease. Data collected in this registry provide an appropriate clinical and demographic profile of patients suffering from SpA in Spain.
KEY WORDS: Spondyloarthropathies, Ankylosing spondylitis, Undifferentiated spondyloarthropathies, Epidemiology, Disease registry
Submitted 18 November 2006;
revised version accepted 14 March 2007.
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