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Rheumatology Advance Access originally published online on October 31, 2008
Rheumatology 2009 48(1):53-56; doi:10.1093/rheumatology/ken410
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© The Author 2008. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org

Involvement, satisfaction and unmet health care needs in patients with psoriatic arthritis

Y.-Y. Leung1, L. S. Tam2, K. W. Lee3, M. H. Leung4, E. W. Kun1 and E. K. Li2

1Department of Medicine and Geriatrics, Tai Po Hospital, 2Department of Medicine and Therapeutics, Chinese University of Hong Kong, 3Department of Medicine, Pamela Youde Nethersole Eastern Hospital and 4Department of Medicine, Queen Elizabeth Hospital, Hong Kong SAR.

Correspondence to: Y.-Y. Leung, Department of Medicine and Geriatrics, Tai Po Hospital, 9 Chuen On Road, Tai Po, N.T., Hong Kong SAR. E-mail: katyccc{at}hotmail.com


  Abstract

Objective. To examine the involvement in care, participation in medical decision, satisfaction of health care and unmet needs in patients with PsA. To explore factors related to involvement and satisfaction with care.

Methods. One hundred and five patients with PsA attending four regional hospital rheumatology outpatient clinics were invited and consented to self-administer questionnaires, including socio-demographic data, quality of life with SF-12, involvement in medical decision, satisfaction with care and unmet health care needs.

Results. The overall perceived knowledge of disease was moderate. Good disease knowledge and good physical functioning were positively associated with involvement in care. Age, sex and pain scores were not associated with involvement in multivariate analysis. A low score in at least one question on involvement was the single independent negative predictor for satisfaction with health care. Only a minority (9%) was actively participating in medical decision-making. Among non-participants, 61.5% expressed the wish to participate. In aspects of education of disease, advice for exercise, psychological support and social support, respectively, 68.3, 73.3, 29.3 and 41.6% of the patients expressed unmet needs.

Conclusion. Low involvement is negatively associated with satisfaction with health care in PsA. Good knowledge of disease and good physical functioning is positively associated with involvement. The current study supports patient education as an important factor associated with involvement of and satisfaction with care in PsA patients. Such patients have a high desire for information and numerous unmet health care needs. There is a need for improvement in the delivery of care to patients with PsA.

KEY WORDS: Psoriatic arthritis, Patient involvement, Patient satisfaction, Unmet healthcare needs

Submitted 30 March 2008; revised version accepted 22 September 2008.
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