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Rheumatology 2001; 40: 487-489
© 2001 British Society for Rheumatology
Editorials |
Living with the hypermobility syndrome
C/o Hypermobility Clinic, Centre for Rheumatology, University College London Hospitals, 40–50 Tottenham Street, London W1P 9PG, UK
The Hypermobility Syndrome Association (HMSA) is a support group run by and for people who have the hypermobility syndrome (HMS) and their families. We receive many letters and telephone calls every day from people who require not just moral support but also urgent help to find effective treatment and answers to many questions about the condition. One common denominator our members share is that they feel that most medical practitioners (including rheumatologists) do not understand the impact that HMS has on the lives of patients, nor is the medical community able to provide effective treatment for them. We have found that the HMS is a complex disorder that is difficult both for medical practitioners to treat and for patients to control, and that there is poor communication between the two groups. Determining why this is so may open the way for the patient and the doctor to find new and
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