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Rheumatology Advance Access originally published online on November 6, 2006
Rheumatology 2007 46(2):188-191; doi:10.1093/rheumatology/kel368
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© The Author 2006. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org

EDITORIALS

Recognition of emerging adulthood in UK rheumatology: the case for young adult rheumatology service developments

A. Jordan and J. E. McDonagh

Department of Paediatric Rheumatology, Birmingham Children's Hospital NHS Trust; Division of Child and Reproductive Health, University of Birmingham, Edgbaston, Birmingham, UK.

Correspondence to: Dr Janet E. McDonagh, MD, FRCP, Senior Lecturer in Paediatric and Adolescent Rheumatology, Institute of Child Health, Birmingham Children's Hospital NHS Trust, Steelhouse Lane, Birmingham, B4 6NH, UK. E-mail: j.e.mcdonagh@bham.ac.uk

The first 150 words of the full text of this article appear below.

Current available evidence is persuasive of the need to improve the transition and transfer of young people with chronic rheumatic disease to adult-centred rheumatology services [1, 2]. Recent years have witnessed the arrival of long-awaited governmental support for this in the form of several major documents including the National Service Framework (NSF) for Children, Young People and Maternity Services [3, 4] and Transition: Getting it Right [5]. These have been further supported by important documents from professional bodies including the Royal College of Paediatrics and Child Health [6] and the Royal College of Nursing [7].

Although transition starts ideally in early adolescence, it does not finish until the young adult is participating fully in adult health care. Much of the research in transition has been paediatrically driven and it is now timely to start addressing what happens following . . . [Full Text of this Article]

Rationale for the development of services for young adult rheumatology service developments

Evidence of need

Numbers
Associated morbidity
Transitional workload at transfer to adult care
Difficulties at transfer expressed by young people themselves
Disease outcome in adulthood
Challenges of adolescent onset disease

Evidence of benefit

The way forward

Conclusions


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