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Rheumatology Advance Access published online on June 19, 2007

Rheumatology, doi:10.1093/rheumatology/kem130
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© The Author 2007. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org

Delay in presentation to primary care physicians is the main reason why patients with rheumatoid arthritis are seen late by rheumatologists

K. Kumar1,2, E. Daley1, D. M. Carruthers1, D. Situnayake1, C. Gordon1,2, K. Grindulis1, C. D. Buckley1,2, F. Khattak1 and K. Raza1,2

1Department of Rheumatology, Sandwell and West Birmingham Hospitals NHS Trust and 2MRC Centre for Immune Regulation, Division of Immunity and Infection, The University of Birmingham, Birmingham, UK

Correspondence to: Dr K. Raza, MRCP PhD, MRC Centre for Immune Regulation, Division of Immunity and Infection, The University of Birmingham, Birmingham B15 2TT, UK. E-mail: k.raza{at}bham.ac.uk


   Abstract

Objectives. To study the delay from the time of symptom onset to assessment by a Rheumatologist in patients with rheumatoid arthritis (RA) and to determine the contributions of patient and physician dependent factors to this delay.

Methods. Data were collected from 169 consecutive patients with RA at the time of assessment by Rheumatologists working in hospitals serving an inner city population in Birmingham, UK. Dates were recorded for: (i) onset of inflammatory joint symptoms; (ii) initial assessment in primary care; and (iii) referral from primary to secondary care. (iv) initial assessment by a rheumatologist in secondary care.

Results. The median delay from the onset of symptoms to a patient being assessed in secondary care was 23 weeks (IQR 12–54 weeks). The median delay before the patient was assessed in primary care was 12 weeks (IQR 4–28 weeks). For 96 patients (57%) more than half of the overall delay in assessment in secondary care was accounted for by a delay in assessment in primary care.

Conclusions. Patient dependent factors, leading to a delay in consulting primary care physicians, are the principal reasons for the delay in patients with RA being seen by Rheumatologists in our population. A considerable body of evidence demonstrates that the earlier that therapy is introduced the better the clinical outcome. Consequently it is important to understand why some patients with RA delay in seeking medical advice, in order to allow effective interventions to reduce this delay.

KEY WORDS: Rheumatoid arthritis, early arthritis, diagnosis, delay

Submitted 29 November 2006; revised version accepted 5 April 2007.
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